Special needs and sleep
Many children with special needs also face significant sleep challenges, a draining double-whammy that leaves millions of parents and children exhausted. The National Association of School Psychologists reports that as many as 30 percent of children may have a sleep disorder, but rates are much higher among children with special needs. Recent studies published in Pediatrics link childhood snoring and sleep apnea, or “sleep disordered breathing,” (SDB) to behavioral problems and an increased need for special education. In fact, SDB is strongly associated with conditions like Down Syndrome and Cerebral Palsy. What’s more, sleep problems can be especially devastating to children with special needs, because the resulting sleep deprivation can worsen the symptoms of their existing medical or behavioral problems, says Carole L. Marcus, MD, director CHOP Sleep Center in Philadelphia.
Night Rumbles:Snoring & Sleep Apnea
Most children snore once in a while, and 10 percent snore most nights. But these nighttime noises shouldn’t be dismissed as “normal.” Researchers now believe that snoring is on the same spectrum as sleep apnea, a disorder characterized by pauses in breathing that cause brief awakenings. Left untreated, sleep apnea can contribute to behavioral problems and learning difficulties, even hyperactivity. A study by the American College of Chest Physicians found that children who snored loudly were twice as likely to have learning impairment. The potential impact is so severe that the American Academy of Pediatrics recommends that all children who snore be screened for sleep apnea, says Robert Heinle, MD, of the Nemours/Alfred I. duPont Hospital for Children Sleep Lab in Wilmington, Delaware.
Other SDB warning signs include sleeping in strange positions, experiencing night terrors, bedwetting, or perspiring during sleep, says Renee Turchi, MD, board-certified pediatrician with St. Christopher’s Hospital for Children in Philadelphia.
HOW TO HELP: The good news: nearly all otherwise-healthy children with sleep apnea respond well to having the tonsils removed, says Marcus. Back-sleeping can exacerbate snoring; regular snorers or those with sleep apnea should choose another position (“back to sleep” is still best for babies, however).
Beyond Snoring:Sleep & Special Needs
Rates of sleep apnea and other sleep troubles skyrocket for children with special needs. “About two-thirds of children with Down Syndrome have sleep apnea,” says Marcus; a larger tongue, a small mid-face, and lower muscle tone make these children more prone to SDB and apnea. Children with cerebral palsy, spina bifida, and other conditions associated with low muscle tone also have higher rates of sleep apnea. According to multiple studies, over half of children with Down syndrome ages 7-11 wake during the night, and nearly 40 percent wet the bed.
Children with autism can have difficulties with the circadian rhythm, the sleep-wake cycle that governs wakefulness and sleep, driving them to stay up too late, says Marcus. “Our brains regulate sleep, so if the brain is abnormal for any reason, sleep is going to be impacted, too.”
HOW TO HELP: Though some special-needs sleep problems are physiological in nature, such as those related to low muscle tone, many are behavioral, such as habitual night wakings, waking too early in the morning, or fighting bedtime. “Often, parents may not set the same bedtime limits for children with special needs that they set for other children,” says Marcus. Defining clear parameters for sleep — including when bedtime occurs, where a child sleeps, and what is an acceptable hour to wake in the morning — and gently yet firmly enforcing these household rules, night after night, can help get sleep on track for children with special needs.
Malia Jacobson is a nationally published health journalist and mom. Her latest book is Sleep Tight, Every Night: Helping Toddlers and Preschoolers Sleep Well Without Tears, Tricks, or Tirades.
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